OsteoLink is an initiative of the International Osteoporosis Foundation (IOF)
and the Division of Bone Disease at the Faculty of Medicine, University of Geneva.

  • We are committed to protecting OsteoLink member privacy. You can find the full Privacy Policy here, but here's a summary:
  • We promise never to give away any information about OsteoLink members to anyone else for commercial purposes
  • We will never disclose personal details to any commercial organisations
  • In return, we ask that you help us to make OsteoLink a friendly, welcoming community where all users are treated with equal respect and care, and where people can share opinions, thoughts and advice freely and without fear of abuse or criticism

DATA PROTECTION

  • Members only need a valid e-mail address to register for OsteoLink. Members can register with their own names if they choose, or use a nickname or alias instead
  • Registration information may be available to or stored by the IOF or the National Societies
  • OsteoLink members will be made aware of privacy and data protection policies at the point of registration

                                     PRIVACY POLICY

We are committed to protecting and respecting your privacy when you visit and connect with other people who care about osteoporosis on http:au.osteolink.org ("our site").

In this Privacy Policy, "we", "our" and "us" refers to the International Osteoporosis Foundation (IOF). Full details of our organisations are set out in our terms of use.

The policy (together with our terms of use and any other  documents referred to on it) explains how we will process and use any personal data we collect from you, or that you provide to us. Essentially, personal data means information that can be used to identify you within the meaning of the Federal Data Protection Act.

Please read the following carefully to understand our views and practices regarding your personal data and how we will treat it. BY USING OUR SITE, YOU ARE CONSENTING TO YOUR PERSONAL DATA BEING USED IN THE WAYS SET OUT IN THIS PRIVACY POLICY. If you do not want your personal data to be used in these ways, please do not use our site.

1. INFORMATION WE MAY COLLECT FROM YOU

We may collect and process the following data about you:

  • Personal data that you provide at the time of registering to our site, such as your name, email address and other contact details.
  • The information we learn about you from your use of our site, including personal data about your health, diagnosis and treatment.
  • If you contact us, we may keep a record of that correspondence within the applicable retention periods. We may also ask you for information when you report a problem with our site.
  • We or our affiliates may also ask you to complete surveys that we use for research purposes, but of course your participation in surveys is optional.
  • We may also collect and process any material you transmit or post through your use of our site (including, but not limited to, any data, forum posts, survey responses, questions, comments and suggestions) within the purpose described in Clause 3.

As our terms of use explain, we are not responsible for the use of any personal data that you may choose to disclose to third parties through your use of our site and any such disclosure shall be made at your own risk. Please be aware that any material which you post or upload to the interactive parts of our site may be visible to other people viewing our site. Please do not post or upload anything which you do not wish other people including ourselves to read or use.

2. WHERE WE STORE YOUR PERSONAL DATA

The data that we collect from you may be transferred to, and stored at, a destination within Switzerland and/or the European Economic Area ("EEA"). It may also be processed by third parties operating within Switzerland and /or the EEA which work for us or for one of our suppliers. Such third parties may be engaged in activities such as the provision of technical or support services. By submitting your personal data, you expressly agree to this transfer, storing or processing. We will take all steps necessary to ensure that you data is treated securely and in accordance with this privacy policy and with the applicable data protection legislation and any applicable data protection law.

If we provide (or where you have chosen) a password which enables you to access certain parts of our site, you are responsible for keeping this password confidential. We ask you not to share a password with anyone.

Unfortunately, the transmission of information via the internet is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your data transmitted to our site; any transmission is at your own risk. Once we have received your information, we will use strict procedures and security features to try to prevent unauthorised access.

3. USES MADE OF THE  INFORMATION

    We use information held about you in the following ways. By submitting information about yourseof via out site you agree to these uses:

WE MAY USE INFORMATION ABOUT YOU, INCLUDING INFORMATION WHICH YOU PROVIDE ABOUT YOUR HEALTH, DIAGNOSIS AND/OR TREATMENT, FOR EDUCATIONAL, RESEARCH AND/OR CORRESPONDENCE PURPOSES. HOWEVER SUCH INFORMATION WILL REMAIN CONFIDENTIAL AND IF IT IS SHARED WITH THIRD PARTIES OTHER THAN OUR RESEARCH/EDUCATIONAL PARTNER ORGANISATIONS AND OUR DATA PROCESSING AGENTS SUCH AS TECHNICAL/DIGITAL/TRANSLATION AGENCIES (AS TO WHICH SEE BELOW) IT WILL BE DONE IN AN ANONYMISED MANNER SO THAT YOU CANNOT BE IDENTIFIED.

To ensure that content from our site is presented in the most effective manner for you and your computer we may send "cookies" to your computer or use similar technologies. If you choose to provide us with personal information, it can be linked to the anonymous data stored in the cookies which can identify you as a unique customer and store your personal preferences as well as tecnical information including click through and click stream data.

To provide you with information that you request from us or which we feel may interest you, where you have consented to be contacted for such purposes.

To allow you to participate in interactive features of our research when you choose to do so.

4 DISCLOSURE OF YOUR INFORMATION 

WE MAY DISCLOSE YOUR PERSONAL DATA (INCLUDING INFORMATION WHICH YOU PROVIDE ABOUT YOUR HEALTH, DIAGNOSIS AND/OR TREATMENT) TO ORGANIZATIONS THAT WE PARTNER WITH ON RESEARCH AND EDUCATIONAL PERTAINING TO OSTEOPOROSIS WITHIN THE RESTRICTIONS OF SEC. 28 PAR.3 NO.3 BDSG. WE WILL ENSURE THAT OUR PARTNER ORGANISATIONS ARE SUBJECT TO THE SAME RESTRICTIONS AS US (AS SET OUT IN THIS PRIVACY POLICY) IN RELATION TO THEIR USE OF YOUR PERSONAL DATA.          

WE MAY ALSO DISCLOSE YOUR PERSONAL DATA (INCLUDING INFORMATION WHICH YOU PROVIDE ABOUT YOUR HEALTH, DIAGNOSIS AND/OR TREATMENT) TO OUR DATA PROCESSING AGENCIES SUCH AS TECHNICAL, DIGITAL AND/OR TRANSLATION AGENCIES FOR ADMINISTRATIVE PURPOSES ONLY. WE WILL ENSURE THAT SUCH AGENCIES ARE SUBJECT TO THE SAME RESTRICTIONS AS US (AS SET OUT IN THIS PRIVACY POLICY) IN RELATION TO THEIR USE OF YOUR PERSONAL DATA.

We may disclose your personal information to other third parties if we are under a legal duty to disclose or share your personal data in order to comply with any overriding legal obligation.

No personal data will be shared with any funding sponsors of OsteoLink. This includes global and national OsteoLink sponsors. WE WILL NOT SELL OR DISCLOSE YOUR PERSONAL DATA TO EXTERNAL COMMERCIAL ORGANISATIONS SUCH AS ADVERTISERS UNDER ANY CIRCUMSTANCES. We may use personal data for research, educational and correspondence purposes only, as explained above.

 5. YOUR RIGHTS 

Our site may, from time to time, contain links to and from the websites of our partner networks, advertisers and affiliates. If you follow a link to any of these websites, please note that these websites have their own privacy policies and that we do not accept any responsibility or liability for these policies. Please check these policies before you submit any personal data to these websites.

You have a legal right to access information held about you. Your right of access can be exercised in accordance with applicable law.

You have the right to request that we remove your personal information from our databases and the right to access, update and correct inaccuracies in your personal information in our custody or control, subject to certain exceptions prescribed by law. To access the personal information we have collected through our site that relates to you, to remove it, to block it or to correct or update it, cancel your account or subscription, please log into your profile (if you have created one with us) or you may email us at h[email protected]osteolink.org  In addition, we will always give you the opportunity to update your preferences regarding our use of your personal information. To protect your privacy and security we will take reasonable steps to verify your identity before granting access.

 6. CHANGES TO OUR PRIVACY POLICY

 Any changes we may make to our privacy policy in the future will be posted on this page and, where appropriate, notified to you by e-mail.

7. CONTACT

 Questions, comments and requests regarding this privacy policy are welcomed and should be addressed to

[email protected]

By clicking "accept" I hereby express my consent with the following as explained above:

 

 1. International Osteoporosis Foundation, 9, rue Juste-Olivier, CH-1260 Nyon and/or

2..Osteoporosis Australia

may process any of my personal data about me, including information I provide about my health, diagnosis and/or treatment:

for educational, research purposes;

to ensure that content from this site is presented in the most effective manner for me and for my computer;

to provide me with information, products or services that I request from you or which you feel may interest me, where I have consented to be contacted for such purposes;

to allow me to participate in interactive features of your service, when I choose to do so; and

to notify me about changes to your service.

This consent refers to personal data, especially any data concerning my name, address, date of birth, physical constitution and data concerning my state of health and behaviour provided by me or collected during my visits on the website.

However, I have the right to cancel this authorization at any time without giving any reasons. I may do this by giving notice to the companies listed above informing them of my cancellation of the authorization to use and disclose personal data. In case of cancelling this authorization any of my personal data will be deleted.