- We are committed to protecting OsteoLink member privacy. You
- We promise never to give away any information about OsteoLink
members to anyone else for commercial purposes
- We will never disclose personal details to any commercial
- In return, we ask that you help us to make OsteoLink a
friendly, welcoming community where all users are treated with
equal respect and care, and where people can share opinions,
thoughts and advice freely and without fear of abuse or
- Members only need a valid e-mail address to register for
OsteoLink. Members can register with their own names if they
choose, or use a nickname or alias instead
- Registration information may be available to or stored by the
IOF or the National Societies
- OsteoLink members will be made aware of privacy and data
protection policies at the point of registration
We are committed to protecting and respecting your privacy when
you visit and connect with other people who care about osteoporosis
International Osteoporosis Foundation (IOF). Full details of our
documents referred to on it) explains how we will process and use
any personal data we collect from you, or that you provide to us.
Essentially, personal data means information that can be used to
identify you within the meaning of the Federal Data Protection
Please read the following carefully to understand our views and
practices regarding your personal data and how we will treat it.BY
USING OUR SITE, YOU ARE CONSENTING TO YOUR PERSONAL DATA BEING USED
personal data to be used in these ways, please do not use our
1. INFORMATION WE MAY COLLECT FROM YOU
We may collect and process the following data about you:
- Personal data that you provide at the time of registering to
our site, such as your name, email address and other contact
- The information we learn about you from your use of our site,
including personal data about your health, diagnosis and
- If you contact us, we may keep a record of that correspondence
within the applicable retention periods. We may also ask you for
information when you report a problem with our site.
- We or our affiliates may also ask you to complete surveys that
we use for research purposes, but of course your participation in
surveys is optional.
- We may also collect and process any material you transmit or
post through your use of our site (including, but not limited to,
any data, forum posts, survey responses, questions, comments and
suggestions) within the purpose described in Clause 3.
of any personal data that you may choose to disclose to third
parties through your use of our site and any such disclosure shall
be made at your own risk. Please be aware that any material which
you post or upload to the interactive parts of our site may be
visible to other people viewing our site. Please do not post or
upload anything which you do not wish other people including
ourselves to read or use.
2. WHERE WE STORE YOUR PERSONAL DATA
The data that we collect from you may be transferred to, and
stored at, a destination within Switzerland and/or the European
Economic Area ("EEA"). It may also be processed by third parties
operating within Switzerland and /or the EEA which work for us or
for one of our suppliers. Such third parties may be engaged in
activities such as the provision of technical or support services.
By submitting your personal data, you expressly agree to this
transfer, storing or processing. We will take all steps necessary
to ensure that you data is treated securely and in accordance with
legislation and any applicable data protection law.
If we provide (or where you have chosen) a password which
enables you to access certain parts of our site, you are
responsible for keeping this password confidential. We ask you not
to share a password with anyone.
Unfortunately, the transmission of information via the internet
is not completely secure. Although we will do our best to protect
your personal data, we cannot guarantee the security of your data
transmitted to our site; any transmission is at your own risk. Once
we have received your information, we will use strict procedures
and security features to try to prevent unauthorized access.
3. USES MADE OF THE INFORMATION
We use information held about you in the following ways. By
submitting information about yourself via out site you agree to
WE MAY USE INFORMATION ABOUT YOU, INCLUDING INFORMATION WHICH
YOU PROVIDE ABOUT YOUR HEALTH, DIAGNOSIS AND/OR TREATMENT, FOR
EDUCATIONAL, RESEARCH AND/OR CORRESPONDENCE PURPOSES. HOWEVER SUCH
INFORMATION WILL REMAIN CONFIDENTIAL AND IF IT IS SHARED WITH THIRD
PARTIES OTHER THAN OUR RESEARCH/EDUCATIONAL PARTNER ORGANISATIONS
AND OUR DATA PROCESSING AGENTS SUCH AS
TECHNICAL/DIGITAL/TRANSLATION AGENCIES (AS TO WHICH SEE BELOW) IT
WILL BE DONE IN AN ANONYMISED MANNER SO THAT YOU CANNOT BE
To ensure that content from our site is presented in the most
effective manner for you and your computer we may send "cookies" to
your computer or use similar technologies. If you choose to provide
us with personal information, it can be linked to the anonymous
data stored in the cookies which can identify you as a unique
customer and store your personal preferences as well as technical
information including click through and click stream data.
To provide you with information that you request from us or
which we feel may interest you, where you have consented to be
contacted for such purposes.
To allow you to participate in interactive features of our
research when you choose to do so.
4. DISCLOSURE OF YOUR INFORMATION
WE MAY DISCLOSE YOUR PERSONAL DATA (INCLUDING INFORMATION WHICH
YOU PROVIDE ABOUT YOUR HEALTH, DIAGNOSIS AND/OR TREATMENT) TO
ORGANIZATIONS THAT WE PARTNER WITH ON RESEARCH AND EDUCATIONAL
PERTAINING TO OSTEOPOROSIS WITHIN THE RESTRICTIONS OF SEC. 28 PAR.3
NO.3 BDSG. WE WILL ENSURE THAT OUR PARTNER ORGANISATIONS ARE
SUBJECT TO THE SAME RESTRICTIONS AS US (AS SET OUT IN THIS PRIVACY
POLICY) IN RELATION TO THEIR USE OF YOUR PERSONAL
WE MAY ALSO DISCLOSE YOUR PERSONAL DATA (INCLUDING INFORMATION
WHICH YOU PROVIDE ABOUT YOUR HEALTH, DIAGNOSIS AND/OR TREATMENT) TO
OUR DATA PROCESSING AGENCIES SUCH AS TECHNICAL, DIGITAL AND/OR
TRANSLATION AGENCIES FOR ADMINISTRATIVE PURPOSES ONLY. WE WILL
ENSURE THAT SUCH AGENCIES ARE SUBJECT TO THE SAME RESTRICTIONS AS
YOUR PERSONAL DATA.
We may disclose your personal information to other third parties
if we are under a legal duty to disclose or share your personal
data in order to comply with any overriding legal obligation.
No personal data will be shared with any funding sponsors of
OsteoLink. This includes global and national OsteoLink sponsors.WE
WILL NOT SELL OR DISCLOSE YOUR PERSONAL DATA TO EXTERNAL COMMERCIAL
ORGANISATIONS SUCH AS ADVERTISERS UNDER ANY CIRCUMSTANCES.We may
use personal data for research, educational and correspondence
purposes only, as explained above.
5. YOUR RIGHTS
Our site may, from time to time, contain links to and from the
websites of our partner networks, advertisers and affiliates. If
you follow a link to any of these websites, please note that these
websites have their own privacy policies and that we do not accept
any responsibility or liability for these policies. Please check
these policies before you submit any personal data to these
You have a legal right to access information held about you.
Your right of access can be exercised in accordance with applicable
You have the right to request that we remove your personal
information from our databases and the right to access, update and
correct inaccuracies in your personal information in our custody or
control, subject to certain exceptions prescribed by law. To access
the personal information we have collected through our site that
relates to you, to remove it, to block it or to correct or update
it, cancel your account or subscription, please log into your
profile (if you have created one with us) or you may email us at [email protected].
In addition, we will always give you the opportunity to update your
preferences regarding our use of your personal information. To
protect your privacy and security we will take reasonable steps to
verify your identity before granting access.
be posted on this page and, where appropriate, notified to you by
are welcomed and should be addressed to: [email protected].
By clicking "accept" I hereby express my consent with the
following as explained above:
International Osteoporosis Foundation, 9, rue Juste-Olivier,
CH-1260 Nyonmay process any of my personal data about me, including
information I provide about my health, diagnosis and/or
for educational, research purposes;
to ensure that content from this site is presented in the most
effective manner for me and for my computer;
to provide me with information, products or services that I
request from you or which you feel may interest me, where I have
consented to be contacted for such purposes;
to allow me to participate in interactive features of your
service, when I choose to do so; and
to notify me about changes to your service.
This consent refers to personal data, especially any data
concerning my name, address, date of birth, physical constitution
and data concerning my state of health and behavior provided by me
or collected during my visits on the website.
However, I have the right to cancel this authorization at any
time without giving any reasons. I may do this by giving notice to
the companies listed above informing them of my cancellation of the
authorization to use and disclose personal data. In case of
cancelling this authorization any of my personal data will be